RE: My Chart Provides Sensitive Medical Information to Fakebook
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In what was written it never said they gave out people's names so in that regard it's not personally identifiable information, meaning they can't link what they are collecting back to you. When you can come back and publish those words "that they linked name(s) to the information collected I'll find that more reliable.
I am not denying the medical conditions, prescriptions, appointments weren't collected. Collecting information that shows, for example, ten people came in on June 1 for a doctors appointment, six people suffering dehydration were given saline infusions, two people were given antibiotics for a sinus infection, and two people were treated for cuts or abrasions....none of that information would identify you as one of those ten people. As a matter of fact if you have a doctors appointment that is not protected health information. I know this because I was contacted by a group who were doing a world wide study, they wanted me to participate. They were given my name to contact me as to if when I came to the center for a doctors appointment I could stop by their center in the building and start the process to be included in the study. I, like you, at first was alarmed at how they even got my name. Your name is not protected just your health information, which they'd needed me to join to get by signing a waiver.
If you do not grasp that Meta can use Google's location data tracking to link medical appointments to specific individuals, you should give the matter more thought - even if patient names weren't just automatically handed over by My Chart. Then, of course, the specialty of the provider is cross checked against prescriptions and conditions, and Voila! PII. This can be clarified and verified by the purchase data collected when people use a credit/debit card to buy scrips, and etc. AI is real good at such trivial but tedious tasks. Many such mechanisms are used to link persons to 'anonymized' data, and the audacity to abuse our data in such ways as are clearly undertaken to skirt legal proscriptions against availing PII to such corporate knaves is all the reason necessary to end legal fictions altogether, IMHO.
The posture of innocence taken by the agents of such outright lies is one of their features that sticks most in my craw.
This is also why I don't carry a phone, ever.
Yeah I had to go to my doctor today because I really strained some muscles a few months ago and can't seem to work it out. I handed them a cease and desist letter in any electronic transfer of my medical information. I went to a specialist and the doctor said "I see you were at your doctor in February" that, along with the call I got from "All Of Us" to join their study I was like enough is enough. I just told them that the only thing the specialist should have been doing was sending my doctor a report on being there and it was not the specialist business to be concerned with anything other than what I am there for and that nobody granted the specialist building to share my name and phone number to ask to join a study since I was coming to the building. The reception who took the letter faxed it over to the records department and said she totally agreed with me. I didn't do the All Of Us study basically for the same reason, I would have had to grant them the right to share my health information without identifiers to health professionals across the country who were working in collaboration on the study. I just didn't feel comfortable with that. Thanks.
That's all you can do, but you did all you can do.
Thanks!