Happy 5th Birthday to my little champion!
Who isn't so little anymore. He is a boy now, despite the small size. Can you believe it 5 years old and still 11kg? But what to do. Pediatrician says we can do only so much, and his lungs and heart will forever be doing more work than usual considering his right lung is very small. The extra work for lungs and heart is needed to ensure sufficient oxygenation for the body. Unless he can eat double, he will always be small and petite. We call him 'Cili padi', the tiny spicy chilli.
Good news is he will rarely be fat. Talking about fat, I always, always, wish that I can transfer some fat to him to haha. 5 years ago today, we were told he might not make it because right CDH (congenital diaphragmatic hernia) is more rare than left and it is affecting the bigger lung. Hernia repair surgery gave him 50% chance of survival.
We were there to witness how he fought for his life. Even with infection which caused his lungs to collapse (we almost lost him), he managed to pick it up from where he was. Thanks to the doctors and nurses too, they tried their best, regulating the numbers every single moment.
Today, he is still experiencing the so-called lifelong complication due to surgeries — hernia repair, fundoplication and gastrostomy — but we are learning to cope when the storm hits us. While we wish everyday will be bed of roses without thorns, thorns do exist. We don't have it together all the time, but we sure do treasure every moments. Everyday is a gift itself. We give thanks for that.
We learn from Jansen to be joyful and to be playful all the time despite pain. He is picking up in his pain threshold too. I guess for a child who experienced pain since baby, pain will be nothing to him one day.
Okay, I do not want this to be a lecture. Haha. Just my own blog to remember this boy reaches 5 years old with us. We could not be more proud to be his parents.
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Happy birthday! Celebrate life and keep fighting! Such a tough young man. May you have more healthy and happy years ahead. Your bright eyes seem to tell so.
Being small and thin is normal. We were all like that in our family. I remember people will tell us, me and my siblings, we should more. We were fed and all but no effect. Only when we were past teens did we become fatter and progressively so as we grow older lol!
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Happy Birthday 🥳 and God bless you little champ!!
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Happy birthday boy more year to come
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Happy birthday boy. Hope he always healthy and happy
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Perhaps where life has reduced part of his lung, have given him a bigger heart making him a bigger and better person. That's what champions do!
Happy 5th to Cili Padi Jansen
Sending you loads of love and I still owe you Salted Egg Fish Skin
I need to find a way to catch you Mummy <33
A Blessed and Happy Birthday to the little one!
It is so good to see he is growing stronger by the day.
Best wishes,
Daily Bread Food Bank
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Happy Birthday the "Wonder" Kid stay blessed....🎂🧁
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Hai, He looks Cute... Convey my Birthday wish too. Wish him lots of happiness and Blessings
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Many happy returns of the day little champion.
May your all dreams comes true.
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Wow..
So cute.
Happy birthday to him
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Talk about putting each day in perspective....treasuring each second....and here's hoping he experiences many more joyful seconds despite his hardships....he obviously has loving, caring incredible parents....blessings to you both as well.
Happy 157,680,000 seconds Birthday!
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Hi @iamjadeline
Wishing a very happy birthday to the champion and the cutie-pie. Hope he had a great one.
nice baby
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